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Rare disease

The GBS | CIDP Foundation International
Research

New Survey Sheds Light on Guillain-Barré Syndrome Challenges

March 2, 2025March 1, 2025 - by Timothy Alexander

CONSHOHOCKEN, PA — The GBS | CIDP Foundation International has unveiled survey data that paints a sobering picture of the physical, social, and financial challenges faced by individuals with Guillain-Barré Syndrome …

New Survey Sheds Light on Guillain-Barré Syndrome Challenges Read More

AscellaHealth
Business

AscellaHealth Honors Rare Disease Day with Commitment to Patients and Access to Care

February 27, 2025February 26, 2025 - by Timothy Alexander

BERWYN, PA — AscellaHealth has reaffirmed its dedication to the 300 million individuals worldwide impacted by rare diseases in recognition of Rare Disease Day. Observed annually on the last day of …

AscellaHealth Honors Rare Disease Day with Commitment to Patients and Access to Care Read More
AscellaHealth
Research

AscellaHealth Introduces Specialty & Rare Pipeline Digest to Advance Healthcare Insights

January 11, 2025January 10, 2025 - by Timothy Alexander

BERWYN, PA — AscellaHealth has unveiled its Specialty & Rare Pipeline Digestâ„¢, a comprehensive digital resource aimed at providing critical information on specialty and rare disease drug launches, biosimilars, and cell …

AscellaHealth Introduces Specialty & Rare Pipeline Digest to Advance Healthcare Insights Read More

Woman with sick child
Health / Medical / National

FDA Launches Rare Disease Innovation Hub to Boost Treatment Development

July 26, 2024July 25, 2024 - by Maryann Pugh

WASHINGTON, D.C. — The Food and Drug Administration announced plans to create a Rare Disease Innovation Hub to accelerate the development of treatments for rare diseases. This initiative, detailed in …

FDA Launches Rare Disease Innovation Hub to Boost Treatment Development Read More

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