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Rare disease

US Department of Health and Human Services (HHS)
Health / Medical / National

HHS Rolls Out Health Push, Fraud Crackdown, Farm Plan

20 hours agoMarch 1, 2026 - by Maryann Pugh

WASHINGTON, D.C. — Federal health officials this week announced a sweeping series of actions ranging from new drug approval guidance and Medicare fraud enforcement to more than $1 billion in …

HHS Rolls Out Health Push, Fraud Crackdown, Farm Plan Read More

The GBS | CIDP Foundation International
Research

New Survey Sheds Light on Guillain-Barré Syndrome Challenges

March 2, 2025March 1, 2025 - by Timothy Alexander

CONSHOHOCKEN, PA — The GBS | CIDP Foundation International has unveiled survey data that paints a sobering picture of the physical, social, and financial challenges faced by individuals with Guillain-Barré Syndrome …

New Survey Sheds Light on Guillain-Barré Syndrome Challenges Read More
AscellaHealth
Business

AscellaHealth Honors Rare Disease Day with Commitment to Patients and Access to Care

February 27, 2025February 26, 2025 - by Timothy Alexander

BERWYN, PA — AscellaHealth has reaffirmed its dedication to the 300 million individuals worldwide impacted by rare diseases in recognition of Rare Disease Day. Observed annually on the last day of …

AscellaHealth Honors Rare Disease Day with Commitment to Patients and Access to Care Read More

AscellaHealth
Research

AscellaHealth Introduces Specialty & Rare Pipeline Digest to Advance Healthcare Insights

January 11, 2025January 10, 2025 - by Timothy Alexander

BERWYN, PA — AscellaHealth has unveiled its Specialty & Rare Pipeline Digest™, a comprehensive digital resource aimed at providing critical information on specialty and rare disease drug launches, biosimilars, and cell …

AscellaHealth Introduces Specialty & Rare Pipeline Digest to Advance Healthcare Insights Read More
Woman with sick child
Health / Medical / National

FDA Launches Rare Disease Innovation Hub to Boost Treatment Development

July 26, 2024July 25, 2024 - by Maryann Pugh

WASHINGTON, D.C. — The Food and Drug Administration announced plans to create a Rare Disease Innovation Hub to accelerate the development of treatments for rare diseases. This initiative, detailed in …

FDA Launches Rare Disease Innovation Hub to Boost Treatment Development Read More

Trending News

  • Retail Theft Arrest, Police Pursuit, and Racing Charges Mark Busy Two Days in Wyomissin

  • Chester County Incidents Under Investigation by State Police

  • Man Wounded in Concord Avenue Shooting

  • 74-Year-Old Man Wanted on DUI Bench Warrant

  • Education Department Shifts Programs in Bid to Cut Red Tape

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Recommended Reading

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Retail Theft Arrest, Police Pursuit, and Racing Charges Mark Busy Two Days in Wyomissin

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