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Applied genetics

Gene
Health / Medical / National

FDA Greenlights First Gene Therapy for Older SMA Patients, Raising Hope Nationwide

November 29, 2025November 29, 2025 - by Maryann Pugh

WASHINGTON, D.C. — The U.S. Food and Drug Administration approved Itvisma, a new adeno-associated virus vector-based gene therapy for spinal muscular atrophy, extending treatment eligibility to adults and children 2 …

FDA Greenlights First Gene Therapy for Older SMA Patients, Raising Hope Nationwide Read More

U.S. Food and Drug Administration
National / Research

FDA Shuts Down Sarepta Gene Therapy Trials After Three Deaths Linked to Liver Failure

July 21, 2025July 20, 2025 - by Maryann Pugh

WASHINGTON, D.C. — The U.S. Food and Drug Administration on Friday placed Sarepta Therapeutics’ gene therapy trials for limb girdle muscular dystrophy on clinical hold following the deaths of three patients …

FDA Shuts Down Sarepta Gene Therapy Trials After Three Deaths Linked to Liver Failure Read More
23andMe
Pennsylvania

Bankruptcy Court Approves 23andMe Sale to Non-Profit Focused on Privacy and Research

July 1, 2025July 1, 2025 - by Maryann Pugh

HARRISBURG, PA — A federal bankruptcy court has approved the sale of genetic testing company 23andMe to the newly formed TTAM Research Institute, a non-profit medical research organization created by 23andMe …

Bankruptcy Court Approves 23andMe Sale to Non-Profit Focused on Privacy and Research Read More

Gene
Pennsylvania

Outrage Erupts Over 23andMe’s Plan to Auction Your Genetic Data

June 12, 2025June 12, 2025 - by Maryann Pugh

HARRISBURG, PA — A coalition of 28 Attorneys General, led by Pennsylvania Attorney General Dave Sunday, has filed a lawsuit to prevent the sale of sensitive consumer genetic data by 23andMe …

Outrage Erupts Over 23andMe’s Plan to Auction Your Genetic Data Read More
DNA
National

FTC Sounds Alarm on 23andMe Bankruptcy: Privacy Fears Loom Over Genetic Data Sale

April 6, 2025April 6, 2025 - by Maryann Pugh

WASHINGTON, D.C. — Federal Trade Commission Chairman Andrew N Ferguson issued a letter on March 31 addressing the U.S. Trustee overseeing 23andMe’s Chapter 11 bankruptcy, highlighting concerns about the potential …

FTC Sounds Alarm on 23andMe Bankruptcy: Privacy Fears Loom Over Genetic Data Sale Read More

Business News
Strategic Combinations

Pathways Neuro Pharma Engages Dragonfly 44 Capital as Strategic Advisor

November 3, 2024November 3, 2024 - by Timothy Alexander

WEST CHESTER, PA — Pathways Neuro Pharma, Inc. has announced a strategic partnership with Dragonfly 44 Capital, a move set to bolster the company’s financial and strategic capabilities. The agreement, …

Pathways Neuro Pharma Engages Dragonfly 44 Capital as Strategic Advisor Read More

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