KING OF PRUSSIA, PA — Greenphire this week unveiled the addition of the Patient-Powered Registry, designed to help foundations more effectively engage and support patient communities. Already the industry leader in removing barriers for clinical research participants, Greenphire leveraged processes rooted in cognitive neuroscience to identify engagement gaps in pre-trial activity and build technology that connects digital user experiences throughout the journey, galvanizing a new level of patient centricity.
The Patient-Powered Registry has been introduced at a time when foundations and advocacy organizations are seeking to gather insights from patients to drive research and are accelerating their use of digital technology to meet that need. The comprehensive mobile and web-based registry will allow disease-specific organizations to communicate with members – delivering patient insights such as condition-specific health information, employing interactive tools such as virtual surveys, and connecting and matching members with clinical trials that they may be interested in. Foundations can create and manage registry content quickly and easily, streamlining operations and improving analytics to enhance patient support and provide value-added data to key stakeholders such as their boards of directors.
“Greenphire is committed to modernizing and integrating each step in the participant journey, leveraging our powerful mobile-enabled technology platform to create a personalized and empowering end-to-end participant experience,” said Jim Murphy, CEO of Greenphire.
For patients, the Patient-Powered Registry allows them to receive trusted information on their disease, enables them to join others with the same diagnosis in driving research, and provides the flexibility to share information, such as treatments they are participating in and symptoms, in real-time.
“An app should not be cumbersome or difficult to use, but engaging and useful for patients. They have enough to deal with as they navigate life and their disease,” said Clay Williams, VP of Mobile Applications at Greenphire. “We heard what advocacy organizations needed and we built technology to address it. This registry makes it easier for them to engage with patients, leading to more meaningful data that can be used for research purposes and to make patients’ lives better.”
The Patient-Powered Registry allows foundations to become even more valuable partners to sponsors by providing foundations with a powerful tool to facilitate connections between sponsors and participants in clinical trials. In addition, it allows them to more easily identify potential participants based on their medical history, geographic location, and other criteria. It also helps keep patients engaged throughout the trial by providing real-time updates on progress and results from an interactive and helpful app.
“The Patient-Powered Registry has been a powerful resource for the Alliance, our members and people living with metastatic breast cancer,” said Laurie Campbell, Executive Director of the Metastatic Breast Cancer Alliance. “Smaller organizations are not equipped with the staff and finances to build an in-house solution for connecting with patients. This registry is an efficient resource that is easy to use and enables us to truly dedicate our time and resources toward our mission of transforming and improving the lives of people living with metastatic breast cancer. Additionally, the registry reduces the burden on patients by pushing out helpful, relevant information, including insights and potential matches to clinical trials.”
For more information on the Patient-Powered Research Registry, please visit http://bit.ly/3XP2QsK.
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